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Alzheimer's Disease Resources

Aayushi Patel, Kierra Irby, Dhruv Kayastha, Simran Kayastha, Spatika Jayaram, Aimee Nguyen, Himanshi Yadav, Researchers for Change

 

Below you can find resources for Alzheimer’s Disease organized by country. Click on a country’s tab to find the resources. In addition to country-specific resources, internationally available resources have also been listed. Resources specific to the European Union have also been listed.

International

This is an organization that funds research, provides education and resources for Alzheimer's disease, and raises awareness about the disease around the globe. They also host caregiving and research centers for Alzheimer's patients in various countries.

The main goal of this blog is to spread awareness of the disease. This blog also gives caregivers an opportunity to share their stories.

This worldwide federation is composed of organizations focusing on Alzheimer's Disease. This federation supports people with dementia and their families.

This foundation has been ahead of Alzheimer's research since 1998. ADDF is supporting scientists around the world who are researching novel drugs to prevent, treat, and cure Alzheimer's Disease. ADDF also supports one of the largest and most diverse clinical development portfolios for AD (Alzheimer's Disease), with over 30 active clinical trials that span multiple drug targets.

The goal of the blog is to support those with dementia and fund research in the field. Though they are based in the UK and are UK's leading dementia charity, their blog is available globally to help those with dementia and their loved ones all around the world.

This is a newly emerging neuroimaging database for research. The database consists of magnetic resonance spectroscopy data from Alzheimer's Disease patients from multiple continents. The purpose of this data is to increase a collaborative research effort in the field of Alzheimer's disease.

This website is run by current or former caregivers. The purpose of it is to provide caregiving tips and tools through the internet. These tips can be used by an individual for themselves or for other loved ones.

This is a database of clinical trials across the globe. This allows one to find a clinical trial for Alzheimer’s Disease near oneself.

ClinicalTrials.gov is a database of clinical trials that are both privately and publicly funded. This allows one to find a clinical trial for Alzheimer’s Disease near oneself.

This blog was created by a daughter when both of her parents were diagnosed with dementia. The blog provides knowledge and information about being a caregiver and what that would entail.

This registered non-profit organization whose membership is exclusively for people with a medically confirmed diagnosis of any type of dementia from all around the world. They seek to represent, support, and educate others living with the disease, and the wider dementia community. They are an organization that strives to provide a unified voice of strength, advocacy, and support for our rights, individual autonomy, and improved quality of life.

This organization is an international research effort including clinical trials and observational studies across the globe focusing specifically on Dominantly Inherited Alzheimer’s Disease. This organization helps you find a study near oneself.

This foundation is a non-profit organization that works to increase the delivery of innovative therapies to those with Alzheimer’s Disease. This organization accomplishes this by reducing the time and cost of clinical trials for Alzheimer's Disease.

The website provides expert, user-friendly educational materials. The materials include resources to help people understand the disease, its symptoms, and information for caregivers.

This is a blog about a wife whose husband got diagnosed with Alzheimer’s. She writes on the blog about how her life changed after her husband’s diagnosis. The blog contains a resource tab for further education on Alzheimer's.

This organization is developing and posting infographics regarding Alzheimer’s Disease on social media. Additionally, they are also developing a database of resources for Alzheimer’s Disease organized by country.

The organization has blog posts providing accurate and recent information that is in the news and in research as well as highlighting patient voices. They also are promoting research advancement and funding.

This international charity was established by the G7 at the London Dementia Summit in 2013. This council and other historic commitments made at the 2013 London summit aimed to improve the quality of life for those with dementia and speed up drug development in this area, making treatments available to those that need them by 2025.

WHO provides information regarding dementia, including Alzhimer’s Disease. Additionally, they also present global statistics as well as develop and publish a global action plan, aided in the establishment of the Global Dementia Observatory (GDO), and has published other useful documents such as handbooks.

A network of young professionals working to develop innovative dementia solutions. The mission of this organization is to improve the quality of care for those with dementia and their loved ones. WYLD is involved in various activities including training, raising awareness, and increasing engagement among others.

International

Bangladesh

Alzheimer Society of Bangladesh (ASB) is a non-profit voluntary organization that operates nationally. This organization primarily focuses on increasing awareness of Alzheimer’s Disease and Dementia in Bangladesh. This organization provides workshops and seminars, supports advocacy, and builds relationships with educational institutions, the health sector, and local government. The organization is also funding the construction of the Dementia Service and Information center which will provide resources including but not limited to dementia care and dementia-related training.

They work to improve the quality of life for individuals suffering from Dementia, which includes Alzheimer’s Disease, as well as for their loved ones. This organization is a member of Alzheimer’s Disease International and has partnerships with the Ministry of Health and the World Health Organization. As for services provided, this association provides dementia care training, engagements and activities, memory cafés, seminars, webinars, workshops, and training for caregivers. 

 

Clínica Las Condes is an organization that provides information on Alzheimer’s Disease specifically in Chile. This clinic has a blog that posts on Alzheimer’s disease and various other health ailments. It also allows one to make appointments or see a doctor.

The Ministry of Health and Family of Welfare is a sector of Bangladesh and provides health information in Bangladesh including information on Alzheimer’s Disease.

This foundation works on dementia care, including Alzheimer’s Disease, in Bangladesh and raises awareness of Alzheimer’s Disease and all other types of Dementia. The goal of this organization is to extend care and treatment and knowledge across Bangladesh by establishing more dementia clinics. Other services provided by this organization include free consultation and support, dementia-specific care at home, support for independent living, and creating awareness. 

Burma (Myanmar)

Alzheimer’s Association Myanmar is an organization that is also a member of Alzheimer’s Disease International. This organization regularly holds memory clinics, clinics focused solely on memory disorders. In addition, the organization also provides other services such as educational events, newsletters, and resources.

The Ministry of Health is a sector of the government of Burma (Myanmar) and provides health information in Burma (Myanmar) including information for Alzheimer’s Disease.

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Chile 

Bupa Clínica Santiago is an organization that provides information on Alzheimer’s Disease specifically in Chile. This clinic has one of the largest neurological groups in private medicine in Chile and has free registration either by phone or email.

Clinica Alemana is an organization that provides information on Alzheimer’s Disease specifically in Chile. This clinic has a Web Agenda to book an appointment or one can call the call center. 

 

Clínica Las Condes is an organization that provides information on Alzheimer’s Disease specifically in Chile. This clinic has a blog that posts on Alzheimer’s disease and various other health ailments. It also allows one to make appointments or see a doctor.

Clínica Santa Maria is an organization that provides information on Alzheimer’s Disease specifically in Chile. This clinic has a Memory Disorders Unit of the Neurology Service which is involved in the diagnosis, treatment, and follow-ups for Alzheimer’s Disease and other related diseases. 

Corporación Alzheimer Chile is an organization that is a member of Alzheimer’s Disease International and Alzheimer Iberoamerica. The services provided by this organization include caregiver meetings, counseling, caring for patients during the day, training for dementia care, educational events, helpline, engagements, activities, memory cafês, newsletter, resources, respite care, seminars, webinars, workshops, technological literacy, support groups, and training for caregivers.

Corporación Profesional Alzheimer y otras (COPRAD) is an organization that has the goal of ensuring the wellbeing of those with Alzheimer’s Disease including by reducing the social and economic impact. This is achieved by the organization through planning, execution and monitoring, programs, projects, initiatives, and actions which will lead to research, education, prevention and treatment.

The Ministerio de Desarrollo Social y Familia is a sector of Chile and provides health information in Chile including information for Alzheimer’s Disease.

Neurognos is an organization that is working on developing a diagnostic strategy for detection and prognosis of Alzheimer’s Disease. Their goal is to make detection and accessibility for Alzheimer’s disease and other neurodegenerative disease available in Chile and globally.

This is a document consisting of the strategies enacted by Chile in 2017 for improving Chile’s effort in making Chile more Dementia and Alzheimer’s Disease friendly.

Superintendencia de Salud is an organization that provides information on Alzheimer’s Disease and other dementias including information specific to Chile. They also provide methods of how to access resources publicly or privately available in Chile.

Denmark

Alzheimer Europe - Denmark is an organization that outlines the Danish National Action Plan which highlights the strategies Denmark will implement to make Denmark more dementia and Alzheimer’s Disease friendly. 

Alzheimerforeningen (Danish Alzheimer’s Association) is an organization that has the goal to ensure better conditions for those who have Alzheimer’s Disease or dementia and their loved ones. This organization is a member of Alzheimer’s Disease International and Alzheimer Europe. The services they provide include advising, informing, and supporting dementia and Alzheimer’s disease research. 

Brain+ is an organization that focuses on improving the quality of life and promoting independent living in those who have Alzheimer’s Disease and Dementia. This organization is at the forefront of Dementia and Alzheimer’s Disease Research in Denmark.

Danish Dementia Research Centre is an organization that carries out research in Denmark and provides dementia and offers educational activities in relation to Dementia and Alzheimer’s Disease. In addition to these services, the organization also provides information and statistics on dementia and Alzheimer’s in Denmark, covers both clinical and translational research, and provides clinical trials. 

The Danish Health Authority is a sector of Denmark and provides health information in Denmark including information on Alzheimer’s Disease.

This is a document consisting of the strategies enacted by Denmark for improving Denmark's effort in making Denmark more Dementia and Alzheimer’s Disease friendly. 

Svendborg Demensby (Svendborg Dementia Village) is a village located in Denmark solely for those with dementia including Alzheimer’s Disease. The village has a city square with shops, restaurants, bars, hairdressers, theater, among others. The village has communal housing with residents having their own apartments but shared kitchens and living rooms. The village facilities are also open to use by non-residents to prevent the feeling of isolation for residents.

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Egypt

Egyptian Alzheimer Society is an organization in Egypt that is also a member of Alzheimer’s Disease International. The services provided by this organization include caregiver meetings, dementia care, and caregiver training, educational events, memory cafés, newsletters, and resources on the disease.They provide seminars, webinars, and workshops as well.

The Egyptian Health Department is a sector of Egypt that provides health information to citizens, including information on Alzheimer’s Disease.

El Salvador

The Association of Relatives of Alzheimer's Patients in El Salvador aims to help treat and educate the public on Alzheimer's disease and other related dementias and to improve the quality of the lives of both patients and their families and caregivers.

The Alzheimer's IberoAmerican Association (AIA) is a non-profit association with members from Argentina, Bolivia, Chile, Costa Rica, El Salvador, Spain, Honduras, Ecuador, Nicaragua, Guatemala, Mexico, the Dominican Republic, Peru, Puerto Rico, Uruguay, Aruba, Brazil, Colombia, Cuba, Panama, and Venezuela who are dedicated to helping families and patients affected by Alzheimer's and other dementias.

The Pan American Health Organization (PAHO) focuses on improving health outcomes for countries in the Americas by working together with countries in this area. They are linked to the World Health Organization and work towards specific goals set by the UN as well, one of which includes “The Decade of Healthy Aging in the Americas”, which is focused on improving outcomes for older adults and their families. This includes initiatives and research related to Alzheimer’s and Dementia.

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France

Alzheimer Europe - France is an organization that outlines the National Action Plan for France. The plan highlights the strategies France will implement to make the country more dementia and Alzheimer’s Disease friendly including but not limited to better access to research, medical and social care, and democracy in health.

This organization is nationally recognized and has up-to-date information for Alzheimer’s Disease resources and information for France. This organization is also a part of Alzheimer’s Disease International and Alzheimer Europe. They have multiple offices throughout France. They support those with Alzheimer’s disease, their caregivers, and loved ones and also aid healthcare providers and aids research. Services provided by this organization include but are not limited to Radio Alzheimer (a web radio), meetings with caregivers, counseling, care, care training, a helpline, engagements and activities, newsletters and resources, seminars and workshops, and support groups.

France Alzheimer Vaucluse is a non-profit organization that is affiliated with the National Union of France Alzheimer Association (France Alzheimer & Maladies Apparentees). This organization works to support those with Alzheimer’s and their loved ones and also has a focus on advocacy.

The Ministry of Solidarity and Health is a sector of France that provides health information to French citizens including information about Alzheimer’s Disease.

This community/village focuses on preserving the autonomy of Alzheimer’s patients in a residential setting and provides all amenities. It allows those with Alzheimer’s to live in a community setting and lead a life similar to what it would have been without Alzheimer’s. The village is open to those with Alzheimer’s and similar ailments and is supported by staff and volunteers.

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Germany

Alzheimer’s Association Germany provides information on Alzheimer’s Disease and how it specifically affects Germany, as well as general information for how it affects the world. In addition to this, they also have e-News which you can sign up for, and the website can translate into Deutsch.

Alzheimer Europe - Germany is an organization that outlines the German National Action Plan, which highlights the strategies Germany will implement to make Germany more dementia and Alzheimer’s Disease friendly.

This organization was founded in 1989 and became a part of Alzheimer’s Disease International. It is also a core member of Alzheimer Europe. The Association consists of at least 136 member associations throughout Germany. The hallmark of this organization is the helpline called “Alzheimer-Telefon.” The services include but are not limited to counseling, training, a helpline, resources, and support groups. Most services are provided online, but they do have an onsite location that could be contacted for in-person or regional events and resources.

The Federal Ministry of Health is a sector of Germany’s government that provides health information in Germany including information on Alzheimer’s Disease.

This is a nonprofit foundation with the goal of helping to improve the quality of life for those with Alzheimer’s Disease or dementia. It also focuses on helping the families and loved ones of those with Alzheimer’s Disease, as well as targeting active research studies in the community.

Greece

Alzheimer Athens (Athens Alzheimer Association) is a non-profit organization for people with Alzheimer’s disease and dementia, and for their loved ones, and healthcare professionals. The goal of this organization is to increase awareness and improve the quality of life for those with Alzheimer’s Disease or dementia. The services provided by this organization include day care centers, memory clinics, nonpharmacological interventions, educational programs, support groups for caregivers, psychiatric clinics for caregivers, home care, and an Alzheimer’s café, all of which are free to those who need the service. This organization is also involved in awareness campaigns, seminars for health professionals, European and international research programs, collaborations with the local government, church, and other organizations, along with involvement with the Greek Dementia Action Plan.

Alzheimer Europe - Greece is an organization that outlines the Greek National Action Plan which highlights the strategies Greece will implement to make Greece more dementia and Alzheimer’s Disease friendly.

The Hellenic Ministry of Health is a sector of Greece that provides health information in Greece including information on Alzheimer’s Disease.

Greek Association of Alzheimer’s Disease and Related Disorders (Hellas) is a nonprofit organization that works to promote awareness, research, development, and training in relation to Alzheimer’s Disease. The services provided by this organization include day care centers, promoting research, education, and training, development of care units for those with Alzheimer’s Disease, providing a 24-hour helpline for information and advice on dementia and Alzheimer-related problems, lectures by health professionals and caregivers on Alzheimer’s Disease, professional seminars along with a vast array of services provided to those with dementia or Alzheimer’s Disease.

Panhellenic Federation of Alzheimer’s Disease and Related Disorders is a member of Alzheimer's Disease International and Alzheimer Europe. The federation has 39 member associations all over Greece, and the services provided by the federation include educational events, newsletters, resources, seminars, webinars, and workshops. The federation also hosts a Panhellenic conference every two years and a program to train health care professionals and caregivers.

Guatemala

Asociación Grupo Ermita Alzheimer de Guatemala is a private, non-profit organization that provides relief to the elderly, disabled elderly and especially Alzheimer's disease sufferers and their families. This organization provides relevant educational services to all its members, the general public, and to all families that have a member living with Alzheimer's disease or a related disease. The organization's Facebook page is updated daily with information and services.

The Alzheimer's Association Desert Southwest Chapter serves Arizona and southern Nevada. This organization provides education and support for those living with Alzheimer's and other forms of dementia, caregivers, healthcare professionals, and families. The Alzheimer's Association is also dedicated to advocating for the rights and needs of those who live with Alzheimer's disease and to advancing critical research toward ways to treat, prevent and cure the disease. Though they’re based in Arizona, they partnered with the Embassy of Guatemala in Phoenix.

The Alzheimer's Association Desert Southwest Chapter serves Arizona and southern Nevada. This organization provides education and support for those living with Alzheimer's and other forms of dementia, caregivers, healthcare professionals, and families. The Alzheimer's Association is also dedicated to advocating for the rights and needs of those who live with Alzheimer's disease and to advancing critical research toward ways to treat, prevent and cure the disease. Though they’re based in Arizona, they partnered with the Embassy of Guatemala in Phoenix. They also have a Facebook page (https://m.facebook.com/alzdsw/). 

The Ministry of Public Health and Welfare (MSPAS) was established to ensure the citizens of Guatemala have access to healthcare. MSPAS oversees and regulates the quality and equitable provision of health care services and controls the finances and management of resources in an effort to promote health, prevent disease, and enhance recovery and rehabilitation.

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